Practical DMD resources for school, care and daily life
Starting points for school support, care planning, emergency information and daily routines.
Practical information can make a difficult week easier. This page collects starting points, not a complete care plan.
For school, ask about accessibility, physical education adjustments, extra time between classes, and a named contact who understands the student's needs. Parent Project Muscular Dystrophy publishes school resources, and Duchenne UK has guidance for school and university.
For care, the World Duchenne Organization publishes standards of care and family guides. Topics include mobility, respiratory care, heart monitoring, bone health, nutrition, and emotional wellbeing.
For emergencies, keep a short, current summary of the person's needs and emergency contacts. Ask your care team what should be included. Do not publish private medical information on this site.
For daily life, start with one problem at a time: transport, seating, accessibility, or fatigue. A local occupational therapist or neuromuscular team can help translate general guidance into a practical plan.
This page is for general information only and is not medical advice.
