Stories shared with consent
Our consent policy for family stories, and why we do not publish private patient information.
All patient and family stories shared on this site are published with informed, written consent from the participant or their legal guardian.
Contributors may choose what details to share. They may withdraw their story at any time upon request. We do not publish names, photographs, medical records, contact details, or other identifying information without explicit permission.
Stories are personal experiences. They do not constitute medical advice and should not be used to make treatment decisions. Care decisions belong with the individual, their family, and their qualified care team.
DMD Panda does not maintain a patient registry, patient portal, or public directory of patients. If you would like to share a story, contact us first so we can explain the consent process.
This page is for general information only and is not medical advice.
